Wednesday, April 18, 2012

Afternoon Update

I haven't had a chance to see Stephen today yet but hopefully I will be going there in the next hour.  Joe has been with him since the morning and will hopefully wheel me over to visit before I get discharged around 3 or 4.  We got a call just after midnight last night that he was having a little trouble taking deep breaths.  It was not completely unexpected.  He had a lot of fluid in his lungs which is why they were slightly collapsed and why they were giving him some oxygen to help them expand.  Instead of keeping him on just the oxygen they put him on a respirator.   He is still doing most of his breathing in his own but the respirator takes care of about 10 of his breaths per minute.  So far they haven't ran anymore tests today and may even postpone them until tomorrow since he is doing fine.  The cardiologists and surgeons meet every Thursday night to discuss their cases so they just need to check the brain and kidneys before that point.  From there they will most likely schedule his surgery but we were reminded that if he is doing well his surgery date could change if they get a baby in who is worse off.
He hasn't been able to eat yet but is getting every thing he needs from the IV fluids.  He will first have to build those lungs up before they will start giving him any feedings.
We are not able to get into the Ronald McDonald house today...such a bummer.  They are completely full right now.  Things could change tomorrow or next week but as for now I am looking into hotel options.
We are also hoping our kids will get to meet him today.  I am so excited for them to see their brother =0)
We will let you know how things go and hopefully post some more pictures later today.
In Him
Kim

2 comments:

  1. Thank you for sharing your updates. The kids and I are Praying and are so happy to hear that for now things are stable. We will Pray that Ronald McDonald house opens up soo. When Spencer was at Loma Linda for surgery it was full at the Ronald McDonald and we were there for a month. We will Ray that a hotel will be open and.comfortable. Please take care Kim. Praying that you are with Stephen soon and you are recovering quickly.
    Emily

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  2. Benjamin says "hi" to Baby Stephen. Praying for the best decisions in medical care.

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