Sunday, February 22, 2015

Keeping Germs Away

I was never a germaphobe.  Honestly...never.  I didn't sterilize my kids pacifiers or even rinse them when they fell on the floor.  I didn't make people wash there hands when they wanted to hold my child and never thought once about asking someone if they had been sick before coming to my house. If ever a mom is going to freak out with germs it is with her first kid right?  Wrong!  

After spending his first month of life in the NICU and learning just how dangerous a virus can be my entire take on germs changed.  Standing orders from our doctor is to not be around anybody who has had the flu or anyone who has even just been around someone else who has had the flu within the past week.  Seriously.  Stephen has had 2 fevers ever and both landed us in the hospital.  

The first six months of his life was a whirlwind.  After his second surgery at 4 months old we were literally at the doctor almost every week.  I went online to check his medical history at our pediatricians office and saw that in Sept of 2012 he had 2 sick visits, then 2 in Oct and 3 in Nov.  He would constantly have a runny nose and be put on an antibiotic for fear it would turn into something worse.  I felt helpless.  I wanted to find away to keep him healthy and away from the doctor.  One night I turned to a Heart Mom support group online to see if others had the same experience and what they did.  I came to learn that there kids had the same troubles and some offered me a wonderful solution...ESSENTIAL OILS!

Essential oils are natural aromatic compounds found in the seeds, bark, stems, roots, flowers, and other parts of plants.  These amazing oils have changed our lives!  Since we started using them over 2 years ago I have seen the amazing benefits they have to offer. Last month was the first time Stephen had a sick visit (it was an ear infection) in almost 2 years!  That alone is incredible!  The list of Essential Oil wins for our family goes on and on.  Michael was able to go over a year without using his inhaler for asthma.  We would use Eucalyptus and a blend called Breath and it would work wonders.  Oregano took care or my warts on my fingers (gross I know) and Joe's athletes foot.  Lavender helped me sleep soundly without tossing and turning all night.  OnGuard would knock a sore throat out almost instantly if caught right away.   Basically I have an incredible natural "medicine cabinet" that I use for cuts, burns, coughs, runny/snuffy noses, athletes foot, sore throats etc.  I truly LOVE these oils and LOVE sharing them with others.  A friends this week had a sinus infection and I was able to lend her 2 bottles...no prescription needed!

I went into these oils skeptical but hopeful.  I was desperate to find something to keep Stephen healthy and Joe and I gave it a go and we are both so glad we did.  I can seriously go on and on about the benefits of these oils and what they can do for your family but rather than write away for the next few hours I will invite those who are interested to contact me for information. I would love to chat with you and share my experiences =)

For those local I will also be hosting an Introduction to  Essential Oils class at my home with my lovely friend and fellow heart mom Susie who introduced me to Doterra.  It is next Sunday March 1st @ 1 pm and will be a fun learning essential oil basics and tips to keep your whole family healthy this winter and spring! We will focus on common uses for essential oils in the home, from strengthening the immune system to ensuring clean hands and surfaces. You will learn how to replace many of the synthetic chemicals in your kitchen and bathroom with natural and safe essential oils! There will be yummy snacks, samples and giveaways too! Let me know if you are interested in coming next week and I will send you the Evite. For those who can't attend but want more information send me an email or give me a call. kdrussell04@aol.com

I still don't love germs but I don't feel so helpless against them. They are truly a God given gift and I think it is pretty cool that I have a bottle of Frankincense and Myrrh on my bathroom counter =)

Much Love,
Kim


Sunday, February 8, 2015

Ruined

My sister-in-law Carlee wrote this beautiful piece on Stephen...a perfect post to share during CHD Awareness Week!  Each time I read it (yes I have read it several times) tears flow.  I am so very blessed to have people in my life who love my son deeply.  They have cried with us, prayed with us and rejoiced with us.  I don't know where I would be without them.  

Without further ado...

Ruined






Thursday, February 5, 2015

I Wear Red for Stephen!

Congenital Heart Defect Awareness Week is coming up!!!  To kick off Awareness week (February 7-14th) tomorrow Friday, February 6th is National Wear Red Day!!!  It may seem silly but it is a simple, fun way to honor a Heart Hero or remember an Angel within our Heart Community.

I encourage you to wear red tomorrow in honor of the adorable little 2 year old you have all been praying for =)  Take a picture and upload it on Facebook and tag Joe or myself...or just wear red!  We will use some of these photos for Stephen's album to show him the love and support he has received throughout his years =)

Feel free to also use the picture below on Facebook to share with others who you are wearing red for!




I hope to see a bunch of you in RED!!!


Monday, February 2, 2015

The "F" Word

Last Monday was Stephen's 6 month heart check-up.  Nothing big, just an EKG and cardiologist appointment.  And then it happened...his doctor dropped the "F" bomb.   I knew the dreaded word would come up sooner than later...but I still expected it to be later.   Stephen is just about ready for the Fontan, his third open heart surgery.   Our hospital goes by weight (15 kilos) and Stephen is currently at 14.1.

I have sat here for a week trying to write a post but every time it gives me a headache and I just stare blankly at the screen.  My heart (and my head) are not ready to go there right now.  I cannot bare to think of the reality that awaits him so instead I have checked myself into a different mode...research mode.

While our hospital and many other centers base the timing of the Fontan on weight, I have been, and will be continuing, to seek second, third, fourth and fifth (if needed) opinions.  Without getting into too many details (I am exhausted with it already) the Fontan comes with a list of risks and complications that are depressing to say the least.  Since our first appointment at Rady's, while I was still pregnant, we were told that the 3rd surgery begins a "time clock" on the liver.  While it is beneficial in raising oxygen saturations it can be hard on other organs, particularly the liver, and I am not sure I am ready to hit "start" just yet.

While Stephen is thriving, and showing no current signs of needing the Fontan, I am questioning the timing issue.  Our doctor is thinking a heart catheterization procedure this summer and open heart surgery early fall.  I am having a hard time with this.  Not only because I can't imagine handing my child over again but because I am not sure now is the best time Stephen.

The weight of this decision is currently is too much for me to bare so I am writing and asking you to pray for Joe and I as we gather information to make an informed decision.

This week I had the pleasure of speaking with another cardiologist in Hawaii who tends to believe in putting off the surgery as long as the child's sats and energy are stable.  He knew talking with him would as he said "muddy the waters" but I am so glad I did.  The reality is we have 2 sub-optimal (at best) options and we need to weigh the benefits of going ahead with the Fontan now with the risks...even if they are down the road.

Thankfully no decision needs to be made now.   Our cardiologist is expecting us to call in June to discuss the matter further.  Until then I will be contacting other doctors on both sides of the fence to gather as much information as I can and seek prayers for wisdom and guidance before we make this awful decision.

Please pray for peace and clarity.  Even if we go through with it this fall I want to have peace that it is the right decision for Stephen and not just because he has gained enough weight to be a candidate. While I know it will one day be inevitable this mommy needs to take the time now to diligently research and pray...and ultimately surrender and trust God.

I truly thank each and every one of you who prays for our son and our family.  May God continue to guide us and use our lives for His Glory.


"Trust in the Lord with all your heart
and lean not on your own understanding;
in all your ways submit to him
and he will make your path straight"


P.S. 
 Now that I got this heavy post out of the way...I hope to follow with some 
more lighthearted updates soon!





Love,

One Blessed Mommy