Friday, September 26, 2014

The Speech

A few have asked if we could share our "speech" from the Gala, so without further ado...

(Kim)

My husband and I feel incredibly honored to be here tonight.   The Ronald McDonald House holds such a special place in our hearts and we consider it a joy and a privilege to share with you our story, our love for the House, and how your support offers relief and hope to families like ours with children facing a medical crisis.    

Our son, Stephen, was born with a very rare, and complex, life threatening heart defect.  A series of three open heart surgeries (2 of which he has had) are needed to survive.  Stephen underwent his first surgery at Rady Children’s Hospital at just 9 days old, and his second at 4 months.   

I will never forget the day we found out about Stephen’s condition.  In one moment my entire world came crashing down.  It is hard to describe to you in words what it feels like to hear this news about your child.  It is more awful... it is heart breaking.  To hear that he had 70% chance to make it through childhood and would almost certainly need a heart transplant when he reached adulthood was more than this mommy’s heart could handle.  

(Joe)

The hardest days were still ahead.  Physically handing over your child and placing their life in someone else’s hands is very difficult.  It was almost unbearable knowing all he would have to suffer and endure and not be able to take any of it away from him.  As a father every part of me wished I could have traded places with my son and suffered instead of him.  During those hardest times we clung to our faith and each other and chose hope over despair.    Stephen spent his first 26 days in the hospital, and during that time we turned to the Ronald McDonald House to meet our basic needs and so much more.

 The House blessed our family through a very difficult time.  From the moment we walked in they went above and beyond to make our family feel supported and loved...but mostly relieved.  Stephen has three older siblings and when we first arrived at the House the staff blessed them with welcome gifts, and for a brief moment, seeing our other kids so full of joy helped ease the difficult situation we had just entered.   A simple gift and a smiling volunteer can go a long way in taking your mind off your child’s situation.  

 When you are away from the comforts of home for an extended period of time, it’s nice to have a comfortable bed to sleep in, a place to shower, and a home-cooked meal a minute away from the stress of the hospital room.  The Ronald McDonald House truly provided our family a "home away from home".   However, beyond the physical needs it provides peace of mind, relief and support.  It took the burden off of our family from having to travel to be with our child.  With our son in the hospital we didn’t want to leave his side, let alone drive back and forth to rest or eat.  Staying at the Ronald McDonald House put us steps away from Stephen and for that we were extremely grateful.  
The House also provided a place for our family to be a family.  It was difficult being torn between our children.  We wanted to be spend every waking moment with Stephen in the hospital but also wanted, and needed,  to be with Michael, Lizzie and Audrey.  The Ronald McDonald House provided a place for our family to be together.  Kim and I got to play with our kids, to laugh, smile and recharge before heading back to the reality that awaited us in our sons hospital room.   Our children loved coming to the house, and still do to this day. 

(Kim)

The Ronald McDonald House is a tremendous asset to our community yet most people don’t know about this amazing charity until like our family, they find themselves in need of it.  It provides a much needed service for families going through a crisis and is largely run on volunteers.   We were so touched by the volunteers and staff at the Ronald McDonald House, and beyond grateful for all they did for us, that we have returned multiple times each year to serve meals, bring gifts and celebrate Stephen’s Birthdays.  We desire to pass on that warm meal, that feeling of relief, that smile of joy, and that glimpse of hope to the many families that turn each year to the Ronald McDonald House while their children are bravely battling in the hospital.  

Stephen is now almost 2 1/2 years old.  He is a bright eyed handsome little boy who is so full of joy and has a smile that lights up a room.  He is our heart Hero and the strongest little kid we know.  He has had 2 surgeries and needs at least 1 more before he turns 5.  When that time comes we are grateful to know that we can again turn to the Ronald McDonald House to help see our family through it. 


The road has not been easy but I am grateful that through all of the trials we have found joy and have witnessed so much beauty come from so much pain .  Ours is just one of many similar stories of a child hospitalized with a serious illnesses and a family that finds themselves needing a home away from home.  Thank you for being here tonight and for supporting a special place that it close to our hearts.

Tuesday, September 23, 2014

Cirque du Romp

Saturday night Joe and I had the honor to speak at the 2014 Cirque du Romp supporting the Ronald McDonald House in San Diego...our "home away from home".   It was an INCREDIBLE evening! Hands down the best party (besides my wedding) that I have ever been to!

For 5 brief minutes we got to share our story to a room of over 400 of "San Diego's leading corporate and community philanthropists".   Wow...what an experience!

The event was located at a private country club in La Jolla. The night started with appetizers in and outside the clubhouse.  It was a time for mingling and silent auction bidding.  We were nervous, and slightly out of place...but hey we did our best to fit in ;)

We were then escorted to the main tent by an awesome ringleader...he was hilarious!  The tent was beautifully decorated, the pictures don't do it justice, and our table was immaculately set with more silverware than I knew what to do with!  The evening started with various entertainment before the live auction during which time Steven Tyler came to join our table.  Kind of weird having a rock legend sitting across from you...but pretty cool =)  Joe and I were called backstage about halfway through the auction where people with way more money than us were bidding a whole bunch of it!  Backstage I was all nerves.  Im not a public speaker...not even close.   Joe and I said a quick prayer before walking up the stairs to the stage and well...God took it from there.  As nervous as I was before, I felt a peace on that stage and I know that God used our words to not only raise money for a worthy cause, but to touch hearts.  I was overwhelmed with emotion when toward the end of our speech the audience erupted into applause at hearing that "Stephen is now 2 1/2 years old".  It was incredible.

We were disappointed when we found out we were not allowed to mention "Christ" or "church" in our speech.  While I get it...it is such a vital part of the story (and our lives) that it is rather difficult to convey our true hope without it.  We had to stick with words like "clung to our faith" "blessed" "hope" etc.  When I shared that with Joe I remember thinking as much of a bummer it is, God is bigger than those words and He will shine through.  Imagine my surprise and delight when a woman came up to us after and stated just that!  She literally told us she could tell we were believers..."it just shined through".  Wow!  Praise God for that!   It was just another reminder of how big He is.  That no deletion of words can keep him from being shown.  I will always smile and chuckle to myself when I think back upon this.  The world can try...but He will always win.

After the speech so many amazing individuals came up to us through the night thanking us for our words and offering their prayers.  This was by far the best part.  Being able to freely share our true hope and joy with so many people was the highlight of the night for me.  We literally couldn't walk to get water or use the bathroom without being stopped and each time we got to share a little more with those who asked.  I am still in awe of all the wonderfulness of the night!   I seriously didn't want to leave!  And to top it off the doctor who delivered Stephen was there...it was icing on the cake to be able to thank him again for the part he played in bringing our sweet boy into the world!
Dr. Daneshmand

Directly after our speech was a paddle raise...yeah I had no clue what that was either.  Basically the ask "who here wants to donate $25,000," and you raise your number and give freely with nothing in return.  They went through various amounts and raised over $230,000 during the paddle raise...remarkable!!!!  I teared up.  I know firsthand how much that money blesses and supports families with children hospitalized during a medical crisis.  They might not have understood all of the good they were doing...but I sure did and it was truly touching to witness it.

Then came the main entertainment...Steven Tyler.  The dude is 66 years old and can still rock the house.  I was brought to the front row by one of the committee members and I have to say...it was pretty cool.   He played classic songs like "Dream On" "Cryin" and "Walk this Way" which you can't help but sing right along to.  (I was however completely embarrassed for all of the slightly crazy older women who were fawning over him, it was just weird, but aside from being creeped out by their advances at him it was pretty awesome).


All in all it was an incredible night.  Seriously amazing to see where God has brought us and how far Stephen's story has gone.  I pray that God will continue to use sinners like us to bring about His glory and that Stephen's story heart will continue to touch the hearts and lives of many.



I smiled this week when reading Ephesians 3:20-21

"Now to him who is able to do immeasurably more than all we ask or imagine, 
according to his power that is at work within us, to him be glory in the church and in 
Christ Jesus throughout all generations, for ever and ever! Amen"

The night we found out about Stephen I quite frankly asked God to not forget His promises and to "show up".  I was broken and scared and wanted to know that some good would come if our son was going to have to suffer.  Well, not only did He let me come to him honestly, but he exceeded all my expectations and has done immeasurably more than all I could have asked for or imagined. I am in awe of His work in our lives and I pray that we would continue to follow and trust in Him and that He would continue to make so much beauty come from something so painful.

Pray for us tomorrow as we have an interview with FOX 5 San Diego for the whole "Passing it On" campaign...seriously this is getting crazy big and awesome.  "Immeasurably more" that is my motto right now.  God is bigger than we imagine.  His ways are above our ways and His thoughts are above our thoughts.  His plans far exceed ours and I look forward to seeing where He takes all of this in the future!  

And again thank you for all of your continued prayers for Stephen and our family over the years.  I LOVE it when people tell me they still have the heart magnet on their fridge and they pray for Stephen.  Please know I have no doubt of the power of all of your prayers and through them all of this is made possible!!!!

Here are a few more pictures from the evening!
With Much Love,
Kim
















Sunday, September 7, 2014

"Passing it On" with Philip Rivers

I am so excited to share this campaign with you!!!  Back in April UT columnist (and friend) Kevin Acee wrote this article about our son Stephen and the Ronald McDonald House.  Sooo much has happened since then!

A few weeks ago our family had the opportunity to meet Philip Rivers for a video/photo shoot to launch this amazing campaign to support the Ronald McDonald House in San Diego!

Both Kevin and Philip will be donating $1 for every completed passing yard Rivers throws this season and they are asking others to join in with them!  Whether you donate $.10 a yard (like us!) or more, it will all go to a great cause!

The Ronald McDonald House (RMH) provided our family with a home away from home when Stephen was hospitalized during his first 2 open heart surgeries and will again be a place we will turn to in the near future.  While it offers a room and 3 meals a day for only $15 it is so much more than just a place to stay.  I wish everybody could experience the warmth and love the RMH has to offer.

Joe and I were already dreaming of ways to come back and serve during our first 26 night stay at the RMH when Stephen was born.  We were beyond grateful for the service, love and care they provided our family and before we even checked out we planned our return!  Within 2 months we brought our youth group to serve our first meal and have returned many times since for meals, birthday parties and the Easter carnival Kevin Acee was a part of.

Needless to say I am amazed at what has transpired through our love for this house.   But it goes deeper.  Being a part of something so big brings me back.  It brings me back to my bedroom the night we found out about Stephen's heart.  After crying until I had no more tears...and then crying some more Joe and I made a promise to each other and to God that we were going to remain faithful and trust in Him.  We knew that night we could choose hope or despair...we chose hope.  I remember frankly speaking to God and saying "You better do your part"  If Stephen was going to suffer, as far as I was concerned, good had better come from it!  I knew all of His promises and I knew good could and would come from this if we followed Him and didn't get in the way.  So that night I promised to do my part and asked God to show up and do his...and boy has he!

Never in my wildest dreams would I have imagined all that God had in store.  He has worked in such incredible and unforeseeable ways... and really why would I have excepted anything less?  I was hoping that at least 1 other life would have been touched by our son's story, and instead thousands have read about it.  God is so good and so much bigger and mightier than I often realize.  He has had an amazing plan all along and I am in awe of how he has used our pain to bring so much joy!

That is why this campaign is so close to my heart.  It is another glimpse of how God has and is using Stephen's special heart to touch the world.  It brings me great joy.  It is beautiful.

So please take a minute to read this latest article...it is another little glimpse into our reality.

and then check out the Website here Philip Rivers' Passing it On... it has an incredible video of Philip Rivers and our family!

Then please please please Pass it On!  Whether you can donate along with us or spread awareness I would ask that you pass along the links to your family and friends.  You never know who may feel a tug to give...and hey it is a fun way to give and route for our local team!!!

I hope Rivers throws for 5,000 yards this season!  Go CHARGERS!!!  And all glory be to God!!!

"Praise be to the Lord God, the God of Israel,
who alone does marvelous deeds.
"Praise be to his glorious name forever;
may the whole earth be filled with his glory"
Psalm 72:18-19