Friday, December 20, 2013

2 Years Ago

Two Years ago today we found out about Stephen's heart condition.  It is one of those few moments in life where I can vividly playback the entire experience.  I can still hear the doctors words, feel the tears stream down my cheek and remember the thoughts that rushed through my head.  Two years ago I was broken, scared and felt hopeless.  I questioned God and blamed myself.   While I could hardly comprehend the road before us I cried in Joe's arms until I had no more tears and eventually that night came to rest on the foundation of our faith.  I remember promising God I would do my part to remain faithful to Him...and telling Him that if my son was going to suffer...good was going to come from it, and I wasn't going to stand in His way.
Looking back on these past two years I see God's abundant faithfulness.  God has used our journey and Stephen's heart to touch so many lives.  Recently we have been blessed by hearing how our faith has inspired a commitment to God and I can hardly begin to let you know how that makes me feel. Knowing that one more soul will be in heaven, that one more life has experienced God, that news gives purpose and meaning to our suffering.  I literally smiled and thanked God.  I thanked Him for His faithfulness.  I thanked Him for using something so painful to bring about something so beautiful.
As I mentioned last year, the Christmas season brings out a variety of emotions.  I love the songs, smells, colors and "cheer" that comes with it.  But for me this time of year also brings the reminder of our desperate need of a savior.  The song "Mary Did You Know" makes me full on ball.


"Mary did you know that your baby boy would some day walk on water?
Mary did you know that your baby boy would save our sons and daughters?
Did you know that your baby boy has come to make you new?
This child that you've delivered, will soon deliver you.

Mary did you know that your baby boy would give sight to a blind man?
Mary did you know that your baby boy would calm a storm with his hand?
Did you know that your baby boy has walked where angels trod?
And when your kiss your little baby, you have kissed the face of God.

Oh Mary did you know 

The blind will see, the deaf will hear, the dead will live again.
The lame will leap, the dumb will speak, the praises of the lamb 

Mary did you know that your baby boy is Lord of all creation?
Mary did you know that your baby boy would one day rule the nations?
Did you know that your baby boy is heaven's perfect Lamb?
This sleeping child you're holding is the great I am"

These words are beautiful to me.  Jesus's birth, death and resurrection are what kept me from despair.   He will save our sons and daughters and will make us new.  The blind will see, the deaf will hear and my son with half a heart will be made whole.  Christmas, my favorite time of the year, took on such a deeper meaning to me two years ago.   

Okay...I didn't mean to get all sentimental...but well I did!
On a much lighter note...
Stephen in doing incredible!  We go back in January for a 6 month check up (x-rays, EKG and cardiology apt) so please pray that his heart is still fabulous.  

Here are a few recent pictures...








LOVE that smile!!!!!
We wish you all a very Merry Christmas and pray that you have a blessed year!!!
Love
Joe, Kim, Michael, Lizzie, Audrey & Stephen



Friday, September 13, 2013

Fallbrook Froyo Fundraiser!

To all of our local friends...

We will be having a fundraiser at Froyo in Fallbrook on Saturday, September 21st ALL DAY!
20% of your purchase will be donated to the Heart Institute at Rady Children's Hospital!
Just print the flyer below or verbally mention this Team Heart Hero fundraiser and enjoy some yummy yogurt!  They will be open from 11am to 9pm so please mark your calendars and join us in raising support for a great cause!


To our friends who do not live locally...
You can still support our fundraising efforts by clicking on the link below and making a donation.

Thank you for your support!!!!
~The Russells

Tuesday, September 3, 2013

Stem Cells

I realized I failed to mention something important in the previos post about the amazing stem cell research being done. The stem cells bring used to improve ventricular function come from banked cord blood or they are harvested from bone marrow taken from the patients hip.  Thankfully we did bank Stephen's cord blood =0)  You can read another article on it here
Our fundraising efforts are well under way!  A BIG thanks to all of you who have already generously donated...it truly means so much to us.  If you would like to join in and make a donation in honor of our little hero just click on the link here
Much Love
Kim

Saturday, August 31, 2013

Team Heart Hero

Well folks it is that time of year again...the Shamu and You Family Walk benefiting Rady Children's Hospital is coming up in just over a month and our family will be raising money for team Heart Hero to support the Cardiology department.  
We feel very proud and blessed to be able to raise money for a cause so dear to our family.

So...WHY DONATE?

Do you know what the #1 Birth Defect in America is?
Answer: Congenital Heart Defects

Congenital Heart Defects (CHD's) are the most common type of birth defect and are the leading cause of all infant deaths in the United States.   Nearly one of every 100 babies is born with a CHD.  Crazy right?  Single ventricle defects, such as Stephen's, are among the most complex and challenging forms of congenital heart defects to treat.  His specific defect is rare, occurring in just 5 out of every 100,000 live births.  

Research is critical.  It is amazing to read how far treatment and care has come for children like Stephen.  30 years ago most babies died and now with multiple heart surgeries these Heart Heroes are reaching adulthood.  Amazing.  I want to help.  I want to give.  I want to spread awareness and pray that others join in too.  Last year our family was able to raise over $2,000, and our team around $13,000, to support the Heart Institute at Rady Children's Hospital.  I want to keep that up because it matters.  Research matters.  It changes lives and offers hope.  The advancements that are being made are incredible and I pray that 30 years from now they will be doing even more amazing things for these little warriors and their families.  
This article on Cardiopoietic 'Smart' Stem Cells , shows some of the incredible advances that are currently being made.  The possibilities bring me to tears.

Donations make a difference.  Generous donations have and are bringing exciting changes to Rady Children's Hospital in San Diego where Stephen receives his care.  This summer a new Cardiovascular Intensive care Unit (CVICU) opened at Rady Children's, and because of generous donations, pediatric heart transplants will soon be a reality...amazing!!!!  Last month our family was able to help create the artwork that will be displayed in the unit...SO COOL!!!!!!




Our family will be walking again this year at the Shamu and You Walk and all donations made on our fundraising page will support the continued efforts of the Heart Institute at Rady's where Stephen receives his AMZING care! 

So... please consider making a donation in honor of our little Heart Hero.  Its simple... just click this link http://ShamuAndYouWalk.kintera.org/stephenrussell


In Him,
The Russell Family

Saturday, July 13, 2013

A Heartfelt Ramble

I have done a lot thinking since we found out about Stephen's condition.  As a Christian I struggled with idea that God created my son with only half a heart.  I understood that we live in a fallen world and that pain and death exist because of sin but still I didn't know what to do with that knowledge when reading Psalm 139.  How could God, the God of love and compassion, knit my son together imperfectly.  He designed the heart.  He knows exactly how it should be and yet he "knit" it in such a way that it wouldn't be compatible with life...how can that be?  It goes on to say... 
"My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth, your eyes saw my unformed body" 
I am sure you can see where I struggled with this passage.  I never believed that God designed Stephen with half a heart, I knew He allowed it, but he didn't choose this for Stephen or for us as his parents.  Yet other believers in hopes of comforting us said things like "God choose you" or  "God gave this to you because he knew you could handle it".  I mean thank you for thinking so highly of us...but really?  I have thought about those words for over a year and finally had the "aha" moment a few months back when I realized...no He didn't!  God didn't look down upon Joe and I and will for this to happen.  He didn't begin to knit Stephen together and think "maybe I'll give him half a heart for my glory and heck Joe and Kim are strong enough to take it"  Rather Stephen's heart is a result of a fallen world.  I had many conversations with Joe and my brothers about God's design, sin, the fall and all of the consequences that have resulted.  If you only knew how much I have pondered the moment sin entered the world.  I have questioned what it was like and how did it all start to unravel.  How did our genes begin to alter, or tornados begin to exist.  What made the lion all the sudden want to eat the lamb and spiders...why spiders?  
All of these crazy thoughts stemmed from me wanting to know that my God didn't choose this for my son.  I am okay with him allowing for nature to take its course but it never sat well with me think that he chose this for us or anyone for that matter.  That didn't line up with who I knew God to be.  
So funny that I stubbled upon this article tonight.  It very much so reflects some of my thoughts and beliefs on this subject and closely resembles a conversation I had with my older brother...read it Mark...you will smile.

Are Birth Defects Really Part of God's Plan?

I too find comfort that one day Stephen's heart, and all of our imperfections, will be made perfect.  I hold tight to the promises of God and while pain and suffering suck...really really suck...I know that through our pain we are drawn closer to him.  
"Consider it pure joy, my brothers and sisters,whenever you face trials of many kinds,  because you know that the testing of your faith produces perseverance.  Let perseverance finish its work so that you may be mature and complete, not lacking anything" James 1:2-4
While I don't find joy in Stephen's condition, I find joy in God's promise.  I find joy that through my suffering and trials I am being made complete.  I don't believe that God chose this for Stephen but I do believe He will use it for His glory and make us stronger and more complete in Him because of it.  And lastly our sufferings are never in vein when we look to the cross.  Christ himself humbled himself and suffered on our behalf.  It is his suffering and death that gives us true hope.  Hope in what is to come.  We will all suffer, face trails of many kinds and know more pain on this earth than we sometimes think we can bare.  We suffer because of sin and sin alone.  When sin entered the world nature was effected and death became reality.  What amazes me is God's love for us.  That no matter how many times we blow him off, choose idols, money and people over him, he never gave up on us.  He sent His son to pay the ultimate price that we may receive what we don't deserve.  Is that amazing grace or what!  
I know this post is a bit of a ramble.  I read the article and just had to write.  This may not be articulate or very well thought out but I felt the need to share anyway.  While I have wrestled through many thoughts, emotions and feelings I am always amazed at God's love and provision.  He has seen use through every step of the way and given me peace through raging storms.  Reflecting on my own journey I often wonder how one gets through these hard times without God.  I have met so many others who suffer without the hope that we have in Christ and it breaks my heart.   I don't know where this post might find some of you...but he won't give up on you...never.  He didn't will for you to go through this pain or for your child to, but he will see you through it.  He loves you more than you could ever know and He sent His only son to die that you may have eternal life in Him.  There is hope in suffering...you just have to accept it.  Your life won't be perfect but it will have purpose.

‘“The Lord bless you
    and keep you;
25 
the Lord make his face shine on you
    and be gracious to you;
26 
the Lord turn his face toward you

    and give you peace.”’ 

In Him,
Kim


Friday, July 12, 2013

Check Up

This morning Stephen went in for his first sedated echo.  Sixth months ago when he last had one they were not able to sedate him because he had a little wheezing in his lungs.  Luckily we had done our job and made him so tired he just slept through the whole thing.
Today was our first experience with  Chloral Hydrate, the medicine they used to sedate him.  They kind of freak you out with all the warnings like wake them up every 20 minutes, don't let them go into a deep sleep and call 911 immediately if you notice any irregular breathing problems...great.  Stephen wasn't allowed to eat any solids or drink milk for 6 hours prior to the procedure and had to stop clear liquids 2 hours before so I thought he would gladly drink whatever they put in front of him...wrong.  The poor guy cried it all down.  Apparently it can take some kids up to 30 minutes to fall asleep, Stephen fell asleep in 5.  He was out.  Since I had hardly any sleep the night before I myself almost fell asleep during the 30 minute procedure with the lights down low =0)
Once the echo and EKG were done it was time for him to wake up.  This seemed even more cruel.  We kept him up late last night and woke him p early this morning so he would be really tired for them.  We then drug him to fell asleep  give him a 30 minute nap and then wake him up...a little unfair but necessary.  He was a crack up.  The medicine makes him all loopy and well "drunk" looking.  He couldn't control his head or eyes at first but you could tell he wanted to.  We gave him some watered down gatorade and heading over to his cardiologist.  He was way crankier than normal...but what could we expect.  We were supposed to weight 30 minutes before giving him food but we just felt bad for him and caved in earlier.  While waiting in our room he desperately wanted down but he couldn't sit himself up so we went back and forth between the floor and our arms and then eventually fell asleep while we were talking to the doctor in the funniest position.  He was in my arms facing me and then pushed back as to look at the ceiling, so as I cupped my hand beneath his head he just fell asleep in an instant.  It was pretty cute =0)
Onto the best part...Stephen is doing AMAZING!!!  The doctor said he couldn't be doing better.  It felt so great to hear those words.  Such a relief and a praise.  He said he has 2 great things going for him, a strong ventricle and a greta family.  I love our doctor.  But really ventricle and us aside...we all know the greatest thing he has going for him.  I know his story could have gone so many different ways, but God has seen him through it all and has blessed him every step of the way.
He did send Stephen home with a 24 hour holter again for some extra monitoring because of the heart block he experienced during his cardiac catheterization before his second open heart surgery.  Stephen has 7 giant leads taped onto his chest and surprisingly has only pulled one off!  Assuming all is well he won't be seen again until January and he won't need another echo for a year!  It can hardly imagine that...I almost want him to have another one just for my own peace of mind =0) 
Needless to say today was a answer to many prayers...so thank you for your continued support!  We appreciate you all!
Much Love
The Russells

Monday, May 13, 2013

Mother's Day


This Mother's day was the year anniversary of bringing Stephen home!  I remember how strange it felt to hold him in our arms without multiple wires.  It was the best!   The first night we hardly slept...let's be real the first year we hardly slept...but God has faithfully seen us through it all. I am one blessed Mommy =0)
Here is my attempt at a Mother's Day photo with my kiddos...


This Mother's Day was special.  Our family went to see Sanctus Real (and JJ Heller).  Matt Hammitt, the lead singer, is the one who wrote the amazing song "All of Me" that I have posted on here previously.  Well, we got to meet Matt yesterday and he held Stephen =0)  I teared up for sure.  2 fellow heart families were there as well and we even got a picture of Matt with our 3 little heros.  It was simple but special.  His words in that song are very dear to me and to have the chance to tell him that was special.




The day after Stephen's 1st birthday I had the opportunity to speak at our local MOPS group.  I was nervous...like remember to breathe before you go up nervous...but God helped give me the words as I shared Stephen's story and our journey for 40 minutes.  It was way out of my comfort zone, I am a behind the scenes person, but so perfect.  I loved the opportunity to share what God has done in each of our lives. I want Stephen's story to be told.  I want people to be encouraged by God's strength and provision.  I want them to know the hope that comes in knowing Christ.  The night we found out about Stephen's heart we were devastated and we prayed that God would either take it away or use it for His glory.  Being able to share all of this with other moms gave me a little glimpse of how God can and will use our pain for good.  I am so grateful for that.
At the end of the talk I showed this slideshow.  It was updated to include photos throughout his first year...and was to Matt's beautiful, touching, always makes me cry, song.

Enjoy!



Happy Belated Mother's Day to all you amazing mothers out there!  

Friday, April 26, 2013

A year ago today...

A year ago today Joe and I woke up and didn't say a word.  Before we left our room at 5:51 in the morning I typed the shortest post ever on this blog "I have no words...please pray".  We hardly slept the night before and wanted to be in Stephen's room extra early.

A year ago today we held Stephen as close as possible.  Joe and I took our turns with him in our arms.  We held him, kissed him and spent time just looking at him trying to soak up every detail from his fingers to his toes.

A year ago today doctors and anesthesiologist came by our little room and explained to us the surgical procedures and all of the potential risks associated with it.  Though we had heard them before, the reality of them sunk in as we signed paper after paper.

A year ago today we got the call from the OR...it was time.  We quietly followed behind our son as the nurses wheeled him through halls and down elevators.

A year ago today Joe and I had kiss our baby goodbye not knowing if he would return.

A year ago today we handed over our child.  We had to put our confidence in the surgeon and his team and our hope and trust in God.

A year ago today I had to wait.  I cried and prayed for hours.  I prayed for every person in that operating room and that God's spirit would fill it completely.   I cried at the thought of Stephen lying there still and unaware of what was going on.  I prayed that God would guide the hands of the surgeon and that He would work through him to help our son.  I cried at the thought of what was being done to him and prayed for angels to surround him.  I prayed and cried until I fell asleep in Joe's arms and then I prayed and cried some more.  I prayed that we wouldn't get a call too early...that nothing would go wrong.  I cried at the thought of losing Stephen and prayed to God for his life.

A year ago today the wait was over.  We received the call that he was out of surgery and that the surgeon would be meeting with us shortly.  We smiled, hugged and anxiously went to the waiting room.

A year ago today I looked into the eyes of the man that saved my sons life.  The surgery went smoothly and Stephen came out of the OR with his chest closed...almost unheard of.  I was so grateful. He said we weren't in the clear yet and that the next 24 hours would be telling...but that so far everything looked good.

A year ago today I braced myself as I walked into my sons room not fully knowing what to expect.  On our way in the doctors and nurses said he looked great..."great" looked near death to me.

A year ago today our son went from this...

                          to this...



A year ago today we felt relief.  We praised God that he was out of surgery and already doing so well. We were physically and emotionally drained.  We felt relieved to be back with him and that the worst was now over.

A year ago today I relied on God in ways I never had to before.  I  understood what it meant that He was my refuge, my fortress and my rock.  I poured my heart out to him and he heard my cries.

A year ago today was the hardest day of my life.

It is a hard day to reflect upon because it was so painful.  But today I sit here in a hotel room so grateful and amazed at what a difference a year has made.  A year ago today Stephen was sedated with so many wires, tubes and lines coming out of him...and today...Today he is this bright eyed handsome little boy who is so full of joy and has a smile that lights up a room.


We want to thank you all for the prayers that have covered our son on this journey.  God has blessed us through them...thank you!  We are so appreciative of all of you!!!

God Bless!!!


Wednesday, April 17, 2013

Happy Birthday Buddy!!!




Dear Stephen,
Words cannot express how much I love you.  Your life has changed me for the better and has taught me to love deeper than I ever knew was possible.  You are the happiest kid!  Your smile is contagious and you fill our days with laughter.  God has given you something extra special that just shines from you.  Everyone who meets you sees it  =0)  You are the strongest little boy I have ever know and I am honored that God chose me to be your mommy.

Happy Birthday Buddy!!!  I love you!!!
Love,
Mommy





Friday, April 5, 2013

1 is around the corner!

In 12 days Stephen will be 1!!!   We have been blessed beyond measure with his life and we are looking forward to celebrating all God has done this past year.  We couldn't think of a more perfect place to celebrate Stephen's birthday than right back where it all began.  On April 17th we will be going down to the Ronald McDonald House to make and serve dinner there and at the NICU.   My mom and I are hopefully sewing some soft little cuddle blankets for the babies in hospital this weekend and we are hoping to bring some gifts down to the Ronald McDonald house too!  When we checked into our room on Stephen's birthday they gave each of our children a stuffed animal.  It is hard to describe how much that meant to Joe and I.  Seeing our other 3 children full of joy helped ease the difficult situation we had just entered.  I know I have said what a special place the Ronald McDonald House is before...but that is because I mean it.  They go above and beyond to make families that are hurting feel loved and cared for.
On Stephen's birthday we would love to shower them with gifts for families like ours.  If you would like to join in our efforts in buying new stuffed animals, coloring books & crayons, or toys that kids could use in a hotel style environment we will be taking all donations down with us on April 17th.  If you are in the Orange County area gifts can be given to my family members and they will bring them down to us on the 13th and of course if you are in the Fallbrook area you can drop them off with Joe or myself.  We feel so blessed and would love to be able to bless others on such a joyous day!  If you have any questions feel free to email me at kdrussell04@aol.com

As for a little Stephen update...he is doing great!  His personality has been coming out more and more. He is a crack up.  He loves to smile with all his teeth and has the best giggle.  He plays peek-a-boo, climbs up and down stairs, points to his nose and says mama all day long.  He adores his siblings and they think he is pretty great too!  Here are a few pictures of the almost 1 year old =0)



Stephen loving on his cousin Dominic...so cute!!!

Wednesday, April 3, 2013

Happy Easter!

Last year our family spent Easter in a hotel.  I had been discharged from the hospital 2 days prior with semi-strict "bedrest" instructions.    As crazy as life was at the time it turned out to be a pretty spectacular day.  My family came down and brought everything for a fabulous Easter dinner.  Luckily the lobby/dining area was empty so we just set up camp...all 16 of us.   I wish I had taken pictures because it was pretty fantastic.
It was fun reminiscing this Easter.   Remembering all little things that made last year perfect.   When I say they brought everything...they did.  My dad even brought their espresso machine.  The boys went over to the basketball court with the kids while the girls talked in the lobby.  When the party thinned out enough to fit in our hotel room we sat and played cards.  
This easter was much the same...minus the setting.   I have a large family who loves being together.  Its hard to spend a day with them and not feel completely blessed.  And whether we spend it at a hotel or my dads house, the meaning of Easter remains the same.  Christ is Risen.  He humbly came to this earth and conquered sin and death.  He is preparing a place for us with no more sadness and no more tears.  The hope that comes with Easter is the hope that makes our earthly trials bearable.  Christ gives meaning to our suffering and hope in this life.
Happy Easter from the Russells...a few days late =0)





Monday, February 18, 2013

10 Months Old!

Here are few cute pictures of our 10 month old!


Reading the Bible with his siblings...such a big boy now!

Sporting his Valentine's Day shirt..."My Heart Beats...4U"
LOVE it!


Stephen is doing everything a 10 month old should.   He is constantly on the move, pulling himself up onto everything, climbing on whatever he can, exploring under tables...he keeps me on my toes!  I can only imagine what it wil be like when he starts walking =0)  
He is still quite the charmer and has a smile that melts your heart.  He has learned to give high fives and kisses and likes to fake cough squeal...he will do anything for a laugh... and his audience finds it all very amusing =0)  Sleep has yet to come but we are making some progress.  We are loving watching him grow and seeing his personality come out more and more.  He is a fun little guy!
Please continue to pray for his health.  A little cold landed us in the ER for 8 hours.  We luckily avoided a hospital stay, but pray that he can steer clear of the nasty bugs going around everywhere.  
With Much Love,
The Russells

Tuesday, February 12, 2013

CHD Awareness Week

Well today is day 6 of Congenital Heart Awareness Week and I am finally getting around to blogging about it.  The truth is I wasn't sure what to write.  I am still very much so in the learning phase of all of this and don't fully know what I can do help...but I do want to make a difference.  
The fact is Congenital Heart Defects (CHD's) are the most common type of birth defect and are the leading cause of all infant deaths in the United States.   Nearly one of every 100 babies is born with a CHD.  Crazy right?  Single ventricle defects, such as Stephen's, are among the most complex and challenging forms of congenital heart defects to treat.  His specific defect is rare, occurring in just five out of every 100,000 live births.  
Research is critical.  It is amazing to read how far treatment and care has come for children like Stephen.  30 years ago most babies died and now with multiple heart surgeries these Heart Heroes are reaching adulthood.  Amazing.  I want to help.  I want to give.  I want to spread awareness and pray that others join in too.  In October our family was able to raise over $2,000, and our team around $13,000, to support the Heart Institute at Rady Children's Hospital.  I want to keep that up because it matters.  Research matters.  It changes lives and offers hope.  The advancements that are being made are incredible and I pray that 30 years from now they will be doing even more amazing things for these little warriors and their families.  
So it is my goal to better educate myself on these matters and to find ways to join in and help.  I would love to do a fundraiser one day, even a simple one to start, and help raise money for the hospital and the Children's Heart Foundation.  In the meantime we will continue to cook meals and make blankets for the Ronald McDonald House with our youth group and find little ways to say thank you to the doctors, nurses, and staff that have touched our lives.  
I again want to thank you all for being apart of this journey.  For taking time to read this post and learn a little more about CHD's.  And mostly for your prayers for Stephen.   Can you believe that in 2 short months he will be a year old!  What a blessing!  I have some fun ideas planned and maybe even some ways people can get involved...stay tunned =0)



Stephen doing a little research of his own =0)



Monday, January 14, 2013

Goodbye 2012...

2012 began with heartbreak, uncertainty and well...fear.  It brought us to our knees, exposed our frailty and taught us to trust in ways we had never imagined.  But it also brought new life, deeper love, and grateful hearts.  Looking back on 2012 there are many moments and days I would never care to relive but with them are ones I will treasure forever. 
We are only 2 weeks into 2013...but so far no complaints.  On January 4th Stephen had a cardiology appointment that was full of only good news.  Everything looks great and he will only need to be followed every 6 months until his next surgery...that means no more appointments until July!  CRAZY!  I again thank you all for your continued prayers.  It has been so encouraging hearing from people and how they faithfully pray for our son. 
On January 4th we also hosted another dinner at the Ronald McDonald with our youth group.  I can only begin to tell you how special that is to us.  I was able to speak with a mom from Menifee whose 6 week old daughter was hospitalized with RSV and will potentially need to undergo an open heart surgery in the future.  She had just checked in and was telling me how welcomed she felt and how when she walked in the door they gave her 2 blankets for her daughters.  My heart was filled with joy.  Those blankets were made with much love by some girls in the youth group and myself.  It was just perfect and felt like one of those "devine appointments".  Joe and I love that we have an opportunity to give back to such a amazing organization and getting to hear that it made a difference to someone made my day =0)
Soon Stephen will be 9 months!  He is crawling, babbling, clapping, blowing bubbles, laughing and shaking his head no.  He loves when we sing to him and bounces and bobs right along.   He is pulling himself up onto furniture and keeps me on my toes as his little hands grab EVERYTHING.  He has 8 teeth now and prefers whatever we are eating to to baby food...so he has already tasted his first pizza.  The only thing he isn't yet doing is walking or sleeping  =0)  
I am looking forward to all of Stephen's firsts that 2013 is going to bring, and as much as I want him to remain my baby forever, it will be a joy to watch him learn and grow.  
Please continue to pray that his heart will be strong and pray that we will all remain healthy during this cold and flu season.  Thank you!  And Happy Belated New Year!