CHD Awareness Week

Well today is day 6 of Congenital Heart Awareness Week and I am finally getting around to blogging about it.  The truth is I wasn't sure what to write.  I am still very much so in the learning phase of all of this and don't fully know what I can do help...but I do want to make a difference.  
The fact is Congenital Heart Defects (CHD's) are the most common type of birth defect and are the leading cause of all infant deaths in the United States.   Nearly one of every 100 babies is born with a CHD.  Crazy right?  Single ventricle defects, such as Stephen's, are among the most complex and challenging forms of congenital heart defects to treat.  His specific defect is rare, occurring in just five out of every 100,000 live births.  
Research is critical.  It is amazing to read how far treatment and care has come for children like Stephen.  30 years ago most babies died and now with multiple heart surgeries these Heart Heroes are reaching adulthood.  Amazing.  I want to help.  I want to give.  I want to spread awareness and pray that others join in too.  In October our family was able to raise over $2,000, and our team around $13,000, to support the Heart Institute at Rady Children's Hospital.  I want to keep that up because it matters.  Research matters.  It changes lives and offers hope.  The advancements that are being made are incredible and I pray that 30 years from now they will be doing even more amazing things for these little warriors and their families.  
So it is my goal to better educate myself on these matters and to find ways to join in and help.  I would love to do a fundraiser one day, even a simple one to start, and help raise money for the hospital and the Children's Heart Foundation.  In the meantime we will continue to cook meals and make blankets for the Ronald McDonald House with our youth group and find little ways to say thank you to the doctors, nurses, and staff that have touched our lives.  
I again want to thank you all for being apart of this journey.  For taking time to read this post and learn a little more about CHD's.  And mostly for your prayers for Stephen.   Can you believe that in 2 short months he will be a year old!  What a blessing!  I have some fun ideas planned and maybe even some ways people can get involved...stay tunned =0)

Stephen doing a little research of his own =0)