The past 2 days have been busy, so for now this update comes without pictures.
Again things change daily, and for us it feels like we take one step forward only to take 2 backwards. We were hoping to go home Monday pending a good chest X-ray. Well X-ray was great, but while he was sleeping Sunday night, his tachycardia picked up, canceling our hopes of home. He had enough arrhythmia that they felt they needed to start him on a new drug to bring down the heart rate.
The plan was monitor it for 48 hours to get the right dose and the new best case scenario would be to get discharged Wednesday. Well, Monday night he gave everyone a scare. While the new medicine is meant to decrease his heart rate, it decreased it too much and it made his sinus node sleepy. So he would go skip a heart beat for a second a few times,,,and then finally went 3 seconds...and doctors and nurses rushed in. He was then hooked back up to the external pacemaker. Ughhhhh....sense the deflation in my tone of writing =(
So, Tuesday came with talks of pace maker insertion. We met with the EP and his team. Saw the battery they will place, got the pamphlets to read, etc. Good news, the surgeon already placed the leads to the heart during the Fontan surgery, sparing them having to reopen his chest right now. Bad news...if he gets this pacemaker the leads last 5-15 or 20 years, so you are just guaranteed more surgeries. I don't love that. There is still an outside chance that the central line is causing all of this. Enough so that one doctor is willing to pull it this morning and cut the medicine and see what happens. Most likely we will still be scheduling another OR trip, but it may be worth a shot. Who knows! Honestly, they don't. But I am so grateful his cardiologist for the last 6 years is on this week. I trust him. The surgeon asked him what the family will do and he said "they will look to me for the answer". He knows us, I know him and I trust him. That is huge. So, if he says go right for pace maker, we will. If he says lets pull the line first and see, we will go that route. That will all be taking place (the decision making and possible line pulling, before 9 am this morning...so please pray!!! Best case scenario is TT line is causing all of this and once its pulled he doesn't need to be paced or have extra meds. I feel like the most likely case if we will en up on this 6th medication and get a pace maker...because that is how we roll. He even told me proper for that and hope for the other...again...he knows my style!
SO please join us in prayer for wisdom and answers!!! Will try to update soon!
Praying.
ReplyDelete