Monday, December 7, 2015

Update


Since Stephen's last ECHO in the beginning of November I have been a little pre-occupied to write but wanted to give an update to those who don't have Facebook.

As you may recall we did not get the news we were expecting back in July (see post here Not the News I Wanted to Hear) 

Stephen's heart function had decreased, as well as his O2 Sats, and I was stunned to say the least.  The plan went form yearly ECHOS to an ECHO ever 3 months.  Well the plan has changed again!  This last ECHO showed no more decrease...if anything the cardiologist actually thinks this ECHO looked better!  And his O2 sats were right back where they are supposed to be!  PRAISE GOD!!!

When I asked where we are at now his doctor said (and I quote) "I feel a lot better about things now" Well good...me too!!!

He said we are still in a holding plan for now.  Stephen has stopped gaining weight (we now have to go back to whole milk) and therefore still isn't the ideal size/weight for the next surgery.  He also agrees that there is no rush and that we will continue to weigh the pros/cons of the surgery's timing at each appointment.  When the benefits of it outweigh the risks is when we will move forward.

His next ECHO is now not for 6 more months...though after we walked out Joe and I both wish we had asked to have another one in 3 months just to make sure.  But for now we will continue to trust in the Lord and praise God for the good news!

As for a non heart update...Stephen is AWESOME!  His joy and smile never fade.  He has such a fun, silly personality!  He still loves school work and asks to do it EVERY day.  I tell him daily to stop growing up but he doesn't listen ;)

Thank you all for your continued prayer!  Please continue to pray that Stephen's heart remains strong and his oxygen saturations stay where they should.

In Him,

Kim








1 comment:

  1. Love the update, and love this! Still praying for sweet Stephen! <3

    ReplyDelete